What the Body Knows

What the Body Knows

“The body knows things about which the mind is ignorant.” - Jacques Lecoq

If you follow me or my work at all then you probably know that I’m a huge proponent of cultivating intuition, particularly as a tool for healing health challenges.

I want to share a little story about how my own intuitive practice helped me last week.

I’ve been trying, with mixed results, to heal a bacterial imbalance in the gut and a deteriorated stomach lining (thanks antibiotics!), since February of this year. Sometimes my gut doesn’t bother me, sometimes it hurts, sometimes it’s super bloated. It’s not the worst thing in the world, but it’s not the easiest either.

A couple weeks ago I was both in pain and really depressed. Like, struggling to make myself do anything depressed. I had just spent four days trying to do the SCD intro diet, which looked like two days of sticking to it and two days of eating the diet AND binge eating potato chips.

I was exhausted and feeling lost about what to do next. It felt like my Naturopath was taking forever to get back to me. I was also questioning his expertise since his last recommendation had made things worse.

Then I remembered that I could just ask my body.

I lied down on the couch, took a minute to arrange pillows so I was super comfortable, placed my hands on my belly (skin to skin), and closed my eyes. I took deep breaths for several minutes, bringing my attention down into my belly. Then I asked it, “what do you need?”

The answer I got, with great clarity, was “a break.”

I kept inquiring.

“A break from what?”

“Solid food.”

“What would you like instead?”

“Juice. Soup. Celery juice. Chicken broth. Squash soup might be okay too”

“How long?”

“Three days.”

Feeling like the instructions were pretty clear, I started this modified cleanse the next day. I had only the things my belly asked for, ginger tea, and buckets of water.

I was surprised by how much easier it was to stick to this prescribed diet since it had come from within me, and not from some outside force. And in the first day and a half, when I experienced a near constant headache, I didn’t worry about it. I didn’t try to fix it. I just understood it was part of the process.

Interestingly, in the first two days of the cleanse, a hawk flew across my path each day as I was out walking. Hawks are understood by many cultures to be symbols of broadening awareness, observation skills, and even physic awareness (!!).

On day three, I woke up feeling pretty out of it so I consulted my belly again, “would it be okay to eat solid food again?” I got a strong “yes” and confirmation on which foods to start with.

After I ate, and even had a little coffee, I felt like a million bucks, like a whole new person, and so excited to be alive.

After days of wanting to talk to no one, I went to a brunch event thrown for my partner's theatre colleagues and shmoozed like a champ for a couple hours, enjoying every minute of it.

One of the most common struggles I hear from folks with health challenges, and particularly folks in my Lyme family, is never knowing what to do next. When health goes south or another promising medicine doesn’t help, there’s this painful looming question mark that keeps coming back. Naturally, we try to problem solve and because, most of the time, our mind doesn’t have the answer, we exhaust ourselves trying to decide between different options that may or may not provide any relief or healing.

The truth is that the body knows what the mind can’t. It also knows things before the mind. This is why we can jump out of the way of an oncoming car before our cognitive mind can tell us to move.

The more we can give the mind a rest and tap into the wisdom of our bodies, the easier healing becomes. Consulting the body facilitates alignment, since we’re doing exactly what the body wants and needs, and saves energy because we’re not riding the emotional see-saw of “Should I do this? Should I do that?” It can be hard to remember in the moment when things feel scary (I forget all the time) but we actually have the answers and our bodies can guide the way.

If you want to learn more about how to cultivate your own intuition so you can tap into your body’s vast wisdom and bring ease to your healing, send me a note and we can have a chat about it. ✨

My Lyme Disease Story

My Lyme Disease Story

I was recently featured on the podcast “Healing Out Loud with Jackie Shea.”

A fellow Lyme survivor, Jackie asked some great questions and gave me the opportunity to share some of the highs and lows of my healing journey – what was challenging and what ultimately helped me heal. Specifically I talk about the power of coaching, intuitive work, moving out of the city, and the Dynamic Neural Retraining System.

I also share how regularly tapping into your own intuition can help you navigate your healing journey with greater ease.

Check out the episode here, or wherever you get your podcasts.

My love affair with the creative process

My love affair with the creative process

The whole room smelled like beeswax. There were five whole pounds of it, that I had melted, one brick at a time, in a microwave on the other side of the building. The beeswax covered paper mache, which covered chicken wire, which covered a wooden frame generously created for me by my carpenter ex-boyfriend. It made a big yellow blob on the gallery floor.

Over the beeswax mass, meant to look like snot, were piles of tissues, prescription bottles, pills, cigarette boxes, and Diet Coke. The joke at Vanderbilt was that all the women lived off cigarettes and Diet Coke. I ate too but I wasn’t immune to the trends. Out of the yellow mass reached mannequin arms and legs wrapped in health insurance statements. Then there were things hanging from the ceiling. Fake flowers, a cleat, an Amartya Sen book.

I had never been given a budget to create art before. It was thrilling to get the check and order wax and mannequin parts on the internet. I felt like a mad scientist and wondered if people on the other side of my orders were wondering what I was up to. Even though I just needed the limbs, I couldn’t find enough disembodied mannequins and ended up with a spare torso. Melanie and I named her and, wrapped in Christmas lights, she became a centerpiece in our otherwise bare kitchen. We talked a big game about getting her nipple tassels, and different kinds for different holidays, but that dream never materialized.

I was creating. I was creating so hard that I ended up ugly crying in the arms of Judy Chicago. Known for being a ruthless critic, some would just say a bitch, she was surprisingly kind and comforting. She held me and told me I was okay. Surely I was not the first art maker to lose my shit in her presence.

I stayed up late many nights in a row, working on the sculpture by myself, happy that I could listen to my favorite music.  One night a friend came to visit and we snuck onto the roof to smoke pot. It felt so naughty, doing something so clearly unsafe, on the roof of an academic building. But I didn’t care anymore. I’d settled into a kind of sweet, I-don’t-give-any-fucks delirium. Nothing was more important than this piece and I was on a deadline.

I showed up to class when I was supposed to but I wasn’t really present. I was focused. Focused on finishing this piece that expressed everything I hadn’t said. Everything I didn’t share about my own complexities, coping mechanisms, and how freakin’ hard it was to be sick at 21. At the opening, so many people looked at me in awe. “I had no idea,” floated towards my ears too many times to count.

They put it in the paper, my sculpture as big as a car, and the objects that hung above it, representing everything I felt I couldn’t have. Of all the amazing art that was created in and for that building over the course of a semester, some made by capital P professional artists, it was my piece that made it in the Nashville Scene. I couldn’t believe it, but also I could. I had never felt so at home, at ease, in the flow.

When others in the class complained about the personalities running the program, I couldn’t understand why they cared. They gave us an entire building to play with! And money to make art! All we have to do to get two classes worth of credits is read some books and make art. Y’all, this is a gift!

Upon completion, I felt wave after wave of relief, like multiple orgasms, given without any expectation of reciprocity.  It was sweetness, peace, and the best kind of exhaustion. I felt spent. It wasn’t just the energy of successfully illuminating invisible illness that made it so magical, but also hanging out with other artists, healing from a breakup with the man I thought I’d marry, and learning how to be with early 20’s angst. It felt like God giving me a taste of what I was capable of.

I didn't even mind that we had to destroy the piece. It was necessary to get it out the door. I remember expressing gratitude to the six black trash bags that contained all of my creation. Thank you. Thank you for everything you gave me.

It felt like the best kind of breakup. I’ll remember it fondly but it was also okay if we never saw each other again.


"Laziness" + How to Find Joy in Discipline

"Laziness" + How to Find Joy in Discipline

This is a Facebook Live post I did about the connection between vision and discipline, specifically with how it relates to social media addiction and the job search process. 

The Power of Clarity

The Power of Clarity

Building on my recent post about the art of saying “no” I wanted to write about the power of being clear on what we want.

A lot of us, especially when we’re young, want to do and experience all the things. We want to say “yes” to job opportunities, adventures, and hang times with people we love. But doing it all can become exhausting and leave us feeling depleted. We look around and see others doing all the things and we wonder, what am I doing wrong?

The answer: You’re not doing anything wrong. You just haven’t yet mastered the art of discerning what’s worth your time and what might have to get shelved for a while. Successful people say no to a lot of things. And it's not because they're picky, it's because they're focused. 

But how does one get focused when there's so much you care about? 

You get clear on where to direct your energy. Clarity, it turns out, more than happiness or anything else, is actually the key to living an awesome life because it informs the way we use our energy.

Maria Nemeth, one of my mentors and author of Mastering Life’s Energies, says that there are six forms of energy: Money, Time, Physical Vitality, Creativity, Enjoyment, and Relationship.

When we’re not clear on what’s most important to us, we use our energy in unfocused ways. We throw it at whatever shiny object or urgent demand comes our way and that lack of focus makes us feel like things are hard and constricted. We begin to experience energy scarcity, which sounds like,

“There’s not enough time.”

“I don’t have enough money.”

“I’m exhausted.”

In contrast, when we’re clear on what we’re trying to accomplish and how we want to use our different forms of energy, we are clearer on the actions we need to take. Life feels easier and a whole lot more spacious.

And how do we get clear?

Working with a coach is a great option, and attending a workshop on visioning, values, or goal-setting can be very supportive and illuminating. (If you don’t already know this about me, I’m obsessed with visioning and regularly run visioning workshops because I LOVE helping folks get clear.)

But, even at a more basic level, you can start to get clearer on your next steps in life simply by asking yourself on a regular basis, what is it that I really want?  It sounds simple, I know, but how often do you ask yourself that, actually listen to the answer, and follow through on that answer?

Mmm hmm. Thought so. Not so much. 

When you ask, “Hey Self, what do I want, really, in regards to…?” you’ll likely hear  a lot of mind chatter about how whatever you want is “unrealistic” or “impossible” or “selfish.” That’s normal. Allow yourself to peek underneath all that. What’s hiding under there, furiously shining its light through the fog? Write about it. Talk about it, either to a person or a recording device. Listen to what you’re saying. What truths rise to the surface? What have you been talking about forever and then talking yourself out of?

I recommend practicing this with low stakes questions, like “what do you want for dinner?” When faced with such a question, start by taking a pause and asking yourself. Listen for and acknowledge the answer. Then act on it, or if someone else asked you, truthfully communicate your answer.

Each time you make a choice that’s authentic to you and aligned with your vision and values, you’re building up your own personal power. And the more you practice with the small stuff, the easier it will be to make bigger decisions like taking a job, moving across the country, or choosing to make a big energy investment of any kind.

Sometimes people will be disappointed. That’s also normal. My friend’s dad used to say that if everybody loves you, you’re doing something wrong. Nobody ever did anything worth writing home about by being a people pleaser 100% of the time. Your power can make other people uncomfortable and that’s good to be aware of but don’t let it stop you from living boldly.

I want to acknowledge that if you’re living with mental health challenges, this practice may not work for you, or you may need to do some more healing before it yields any results. Depression and anxiety create thick walls between us and our truths and if that's present for you, definitely seek healing support from a psychotherapist or counselor, and perhaps some neuroplasticity work like DNRS

How to Master the Art of Saying "No"

How to Master the Art of Saying "No"

I’ve been reflecting a lot on the art of saying “no.” It's a critical success skill yet so many people, myself included sometimes, really struggle with it. 

I work primarily with entrepreneurs, people with health challenges, and people in social change circles. A lot of these folks struggle to say “no” to social engagements, family support asks, volunteer opportunities, and the next grassroots action. Yet, to do anything big, like heal from a complex illness, start a business, write a book, or get a new job you love, requires a decent amount of regular, focused attention. It requires at least some amount of solo time and energy conservation too, things that can really seem out of reach when we’re always attending to the needs of others. I’ve seen even very enlightened people, who have done lots of self-growth work, really struggle with this.

If you’re like, “yeah,” sigh, “that’s me,” your first step is to get a sense of why you say “yes” more than you want to.

Some typical reasons include:

  • You don’t want to disappoint anyone
  • You prefer to avoid conflict
  • You feel like it’s selfish not to say yes

Next, you'll want to get crystal clear on what you actually want to say “yes” to. This is something a coach can support you with but you could start by making a list of three things that you really want to accomplish and three values that you want to put into practice in the next six months. Keep the list handy, like on your phone or in your wallet so you can refer to it easily. The list might look like:

To Accomplish:

  • Launch website
  • Make appointment with accountant 
  • Update resume

Values to practice:

  • Standing up for myself
  • Love of my family
  • Financial responsibility

This list can be a barometer for you to use when making decisions about how you’re spending your time and energy. You'll want to make the list relevant to the context in which you struggle the most to say “no.” If you really struggle with saying “no” at work, for example, have the list be all work related.

When someone asks you to do something, you can consult the list and ask yourself, “Will this support me in doing what’s on the list?” If not, you can feel a little better about saying no.

Then, when someone asks you to do something, practice pausing before you respond. If possible, consult your list. At the very least, take a deep break and ask yourself, “Do I really want to do this?”

Whenever possible, ask the asker if you can consider the request and get back to them. This is a helpful practice anyway because it can give you time to check your calendar, consult your list, and gather any other information that could help you make a more informed decision. Asking if you can get back to someone is an especially good practice for people who say “yes” a lot and end up bailing a lot. Over time this can drastically reduce the overwhelm and scheduling conflicts that lead to bailing. 

To discover what makes it uniquely difficult for you to say "no", so you can build a practice to say it more regularly, with ease, set up a strategy session with me here. 

A Job Seeker's Best Tool

A Job Seeker's Best Tool

Ah yes… the informational interview.

In my work as a career coach I find that there is a lot of mystery around this kind of meeting and fear about asking for them.

Allow me to demystify and clarify!

The purpose of an informational interview is to learn about a field or industry from someone who knows it firsthand. It can, and sometimes does, lead to a job offer, but the purpose of it is not to ask for a job.

Doing informational interviews is an important part of the information-gathering stage of a job search. It usually comes after some solid online, book, and media research and deciding that it is a field that you’d like to explore. You can save time by doing some soul searching or working with a professional to clarify your values and what’s important to you beforehand. This is part of what I do as a coach.

Either way, you’ll eventually need to learn more about the industry, or particular opportunities within the industry and informational interviews are the best way to do that.

Here are some awesome things you can get out of them:

Clarity. These interviews can help you get clear on whether or not you actually want to go into a particular field. At one point in time, I thought I might like to go into urban planning. After two informational interviews, I was very clear that it was not the field for me, which was great to know! Informational interviews can also help you clarify what skills and experience you need to have for certain roles, or what roles in the field would be a good fit for your skills and experience.

Connections. These conversations are a great way to connect to people in the field. Your interview subjects might be able to offer you a job, connect you to a potential employer, or otherwise help you build a network in the field. With each person you meet, ask them who else you should talk to, and ask about professional associations or meetups for people in the field if your have not found any on your own.

Practice. Informational interviews force you to talk about yourself and what you’re interested in, which you need to be good at for the real interviews you’ll do later.

Information. This is more obvious but an informational interview is a great way to learn about organization or industry culture, typical salaries, how competitive it is, common challenges, and everything else you cannot learn from the internet. If you’re looking to start a business, this is a great way to learn some entrepreneurial wisdom and save yourself some of learning the hard way.

How do you ask for an informational interview?

A lot of my clients and workshop participants assume that the people they want to talk to will not want to talk to them or will not have time. Some won’t but some will and they will be excited about it. Deep down, humans like to help other humans. It makes them feel good. Also, a lot of people like getting to talk about themselves and the work they’re passionate about it and want to support others in getting into the field.

It’s always best if you can get an introduction from someone you know. E-introductions are great. That’s when the person you know emails you and cc’s the other person to ask for a meeting on your behalf. If you’re at an event, an in-person intro is great too. Then you can exchange information and set up a follow-up conversation.

Also, you don’t always need to meet with someone in person to have a great conversation and some people don’t have time for that. You might offer to take them out for coffee but say that if a short phone conversation is more convenient, you’d love that too.

Start by making a list of everyone you know who might know anything about the field you’re interested in. Identify the most likely to know folks and contact them first. If you’re not sure where to start, consider posting on social media with something like, “Who do I know who works in finance or knows people in finance?” That could elicit a valuable response and doesn’t necessarily imply that you’re job hunting or exploring your options, in case you are keeping that under wraps with your current employer.

If you can’t get introduced to someone, reaching out via phone, email, or LinkedIn is worth doing. Be sure to follow up at least once. You’re not going to be a pest. People are busy and they might appreciate the nudge.

To get support for your job transition, check out my coaching group Operation Dream Job.

What's (self) love got to do with it?

What's (self) love got to do with it?

My clients with health challenges have heard me say again and again that our body is our greatest teacher.

My body’s most persistent lesson is that the path to healing involves loving myself fiercely, and loving all of myself, even the parts I’d rather ignore, like that weird white hair that grows out of my cheek, or the way I’ve mistreated people I love.

I have made huge strides in my healing and I credit that with the progress I have made in the self-love department. With a lot of therapy, coaching, and energy healing support, I love myself a whole lot more than I used to. Still, my body continues to push me to love more deeply and fully. Everytime I reach a milestone in my healing and think, “I must be nearly there,” I see that there’s another horizon to reach, one that requires more love, more attention, more patience, and more acceptance.

Sometimes my reaction is so whiny. Really? But I already love you so much body. Why are you so needy? Believe me, that doesn’t help.

I suspect my body will continue to push me until there are no shadows or hurt parts left. And that makes sense. When we’re feeling guilt, shame, or beating ourselves up in any way, we tend to deny ourselves what we need, on purpose, or because we’re too distracted by our own drama. Conversely, when we love ourselves fully and treat ourselves as we would our most favorite person in the world, it’s a lot easier for healing to happen, because we actually give ourselves what we need. Healing requires us to be our own beloved.

While I have been mostly free of Lyme symptoms since August, my body has found other ways to remind me that there’s more work to be done. Most recently, I had some really profound emotional and physical reactions to bodywork. I had not gotten a massage in awhile. I was saving my resources for other healing modalities, but I had the opportunity to do some trades and jumped right on it.  One session was visceral manipulation, which I highly recommend to anyone with digestive challenges. It was the only thing that’s ever made my gallbladder pain go away. It also...made me cry for two days. And that was the second time that happened. I woke up and cried two days in a row after a regular massage a month earlier. A couple weeks later, a different bodywork session landed me in bed the following day with a searing migraine. In each instance, I had to just accept that my body was shedding something and rest. With the crying, I suspect it was just a big emotional release, probably of lingering grief. Us spoonies tend to acquire some of that after years of having to live differently from most humans.  

When I wake up crying, my initial reaction is to worry that I’m getting depressed, that I need to seek help, call my psychologist friends, and solve the problem right away. That tizzy I put myself in makes the whole thing worse. I become “hot mess” personified. But once I settle into it and accept that my body needs me to cry and that it won’t be permanent, it resolves itself pretty quickly. In these moments I tell my body that I love it. I ask what it wants and I do my best to deliver.

I tell my body I love it a lot and in general I’ve cultivated a very loving relationship with it. I am able to love it even when it’s causing me pain, or making me feel bloated and pizza-faced. It’s been harder to love my failures. It feels embarrassing even to write about but my biggest hang up is around not being successful – in my business, in healing, and in relationships. Even though I KNOW that no one crushes it 100% of the time, when things don’t go well, or I mess up, or things take way longer than expected, I beat myself up, and pretty brutally sometimes. My friend Heather is good at pulling me out of it. She’ll ask, “why are you being so mean to my friend Noelle right now?”

In addition to her reflection, it’s been useful to learn through coaching that when I’m passing judgment on myself, it’s not coming from my inner wisdom. Instead, it’s a monkey mind conversation.  

“Monkey mind” is a Buddhist term for that inner dialogue we all have that endlessly bounces between doubt and worry, and shares it’s unsolicited critical opinion of everything. I heard another coach call it “you inner evil meanie.” It’s probably in the amygdala, the part of the brain that gives us our fight or flight response. The great thing about Monkey Mind is it’s not the truth. It can contain grains of the truth, but it’s not the end all be all, though it would like us to think it is. When we can see that we’re passing judgment on ourselves and that it’s just Monkey Mind, we can come back to what’s actually true. For example, yes, you could have handled that meeting better but you were also recovering from the flu and even Justin Timberlake’s charming self would have struggled.

When we can see Monkey Mind for what it is in the moment, not the truth, then we can choose to shift our attention back to loving ourselves. It’s a practice and something we need to choose again and again, kind of like meditation. You focus on the breath. Your mind wanders. You notice your mind is wandering and you come back to the breath. You don’t get better at meditating, you get better at noticing when you’re not doing it.

Over time, as we master the art of seeing Monkey Mind, we can get really good at coming back to loving ourselves. It frees up so much energy for healing!

If you want to up your self-love game, Uncustomary has some great resources for practicing self-love in small ways every day.

If you see that you would love some hands-on support with recognizing Monkey Mind and learning tools to help you love the poop out our yourself, let’s chat!

A Spoonie's Annual Report

A Spoonie's Annual Report

"Spoonie," if you’re not familiar, is a moniker for folks with chronic pain, illness, or mental illness, who have more limited energy than the average person.

2017 was my seventeenth year being a spoonie. In many ways, it was one of my healthiest years, which was a blessing. I also saw this year that I might have a shot of being pain and disease-free, a gift that many spoonies do not receive.

2017 was also my first year coaching full time. I quit my part-time job, coaching college students, in February. I was able to make the transition, and pay for some medical expenses later in the year, with financial support from my family. I initially felt a lot of shame about asking and accepting that support – like A LOT of shame – even though they were happy to help.

I asked because I’d cleaned out my savings paying for medicine and was operating at 40-60% of the average 32 year old’s energetic capacity. I saw that coaching full time would both help me make more money and spend more time healing but I didn't have the bridge to get there. 

Given what I could produce in the limited time I had on top of my part-time job, it could have taken me years to make the transition to coaching full-time. Even though that was just the truth, I kept saying to myself, “I have a degree and lots of privilege. I can work hard. I should be able to make this happen on my own.” And being hard on myself like this didn't make any of it easier. 

I see this shame + being hard on the self combo in a lot in my clients too. I think we get swept up in the American rugged individualism narrative and feel like failures when we can't be "successful" on our own, even when we're facing tremendous obstacles that no one could overcome solo. 

I eventually found some compassion for myself and, after a lot of coaching, let myself accept the support and follow my dream. I also realized that it’s not uncommon, across cultures, for families to support each other in business ventures and health crises when they can. It's what you do when you love someone and have resources to share.

I wanted to share openly my experience with support, and what I was able to accomplish this year as a result, in case it’s supportive for other folks. Being a business owner with a chronic illness IS challenging. Being an entrepreneur on its own is challenging, particularly the unstable income part. When you throw limited energy, flare-ups, and lots of doctor’s appointments into the mix, it can be a pretty stressful affair. That said, there are huge upsides, namely having control of your schedule and being able to take naps whenever it’s called for. I wrote about the ups and downs of my experience earlier this year in a post called Adventures in Spooniepreneurship.

Making spoonieprenuership work requires mastering the art of conserving energy and asking for and receiving a lot of support. For most of 2017, I didn’t really see a lot of people. I was saving energy (spoons) for my coaching business. I’m grateful for the friends who made it easy for me, who came and cooked for me, took me out to dinner, or were willing to go on walks or yoga dates. Eventually, I was able to branch out and have more fun, which was crucial for my sanity. I did, as you’ll see below, still get to go on some sweet adventures. There were some I didn’t make it to, and I feel okay about that. Sometimes rest is best.

Going over my personal data points for the last year helped me see clearly what I DID accomplish this year. It helped me shift my mindset in a productive way. I had previously been feeling like a failure, focusing my attention on all the things I didn’t do. I definitely set some goals last year that were really unrealistic, i.e. tripling my income and finishing a book draft. Because trying to do that on top of starting a business makes sense?!? I live and learn! It was a great reminder that new projects always, always take way more energy than we anticipate. 

When I look at these numbers I think, for year one of a new business, in a year that included six weeks of mold-related homelessness and an unexpected move across the state, I feel pretty stoked about this.

Spoonies can get sh*t done. Don’t let anyone tell you otherwise.

Noelle’s 2017 by the Numbers:


Total clients: 36

Coaching hours: 201

Coaching groups launched: 5

Online workshops: 8

In-person workshops and speaking gigs: 6

Yoga classes taught and subbed: 21

Coaching/yoga/healing/marketing workshops attended: 10

Videos posted: 21

Blog posts published: 26

Pieces in other places: 4

Total income: > $30,000



Doctors appointments: 15

Ondamed treatments: 15

Acupuncture appointments: 14

Chiropractic appointments: 33

Intuitive healing sessions: 20 (This is estimated as many were informal)

Yoga classes attended: too many to count



Voice lessons: 10

Camping Trips: 3

Art Museums Visited: 3

Pirate Museums Visited: 1

Plays seen: 5

Trips to see old friends out of state: 2

Friends visited me from out of state: 2

(Small) Mountains Climbed: 2

Potato varieties grown for the first time: 3

Expanding Enrollment for the Fight Against White Supremacy

Expanding Enrollment for the Fight Against White Supremacy

I wonder what Dr. King have to say about the state of our country today? I imagine he’d note how many more white people are now aware of the hatred that is still alive and well in our country. While there is still much, much work to be done, there are seemingly many more people interested in doing that work. And that’s a good thing, right?

As anyone who’s failed to keep a new year’s resolution knows, desire doesn’t always translate into action. But that lack of action isn’t always a result of ignorance or laziness as many assume. I have seen in my work as a coach that more often people are overwhelmed and unsure, paralyzed by not knowing how to contribute. Some folks truly don’t know what to do. Others don’t feel like they fit the mold of a typical activist, or don’t have time to volunteer for an organized campaign because of work and family obligations, or they simply can’t physically participate the way others can. I’ve talked to so many sick and disabled folks who want to be marching in the streets and haven’t figured out what they can do from home. All these people are deeply saddened and worried about their seeming inability to help with one of the most important challenges of our time.

Meanwhile, others work themselves to death. The recent passing of Erica Garner, daughter of Eric Garner who was killed by police in Staten Island in 2004, has had me thinking about how we can better support our most vulnerable activists. The 27-year-old mother of two had been fiercely campaigning against police brutality since her father’s death when she died from a heart attack caused by an asthma attack. We don’t know exactly what contributed to Erica’s health challenges but we know that health outcomes in African-American communities are the worst of any racial group in America. Erica was a perfect example of how often the most oppressed among us disproportionately shoulder the heaviest burden of reversing that oppression.

In the organizational side of the social change community, there has been a growing shift towards partnering with and supporting these most vulnerable front-line activists. That is necessary and good but activists need more than coalition partners. Who is feeding them, babysitting their kids, coaching them to delegate more, and encouraging them to rest because we want them in the movement for the long haul?

Everyone and their mom wants to start a non-profit, right? I’d love to see one that connects the up-until-now paralyzed would-be activists with existing front-line activists in their area. If you’ve ever been a burnt out activist yourself, you know how freaking amazing it would be if one of your neighbors texted to say, “Hey, I’m making vegetarian chili and cornbread. Can I bring you some?”

pie and white supremacy.png

Providing care is a vital role in the movement. Think of all the families who housed and cooked for civil rights marchers. While they may not have joined in the streets, they were serious heroes too. The work would not have happened without them. Now that many historic community-building institutions have crumbled and we’re all glued to our phones, we need to find new ways to connect natural caregivers to frontliners.

If we are going to create the deep and diverse relationships needed to truly dismantle white supremacy in this country, we must be willing to take care of one another. We, white activists, talk about the need to speak up, educated, and hold accountable our own neighbors, friends, and family members. Yes, we do. And, we need to start asking our neighbors and activist friends, especially the POC, if we can bring them a pie, watch their kiddos, or otherwise support them. A pie wouldn't have saved Erica Garner, but if we were all supporting each other in deeper ways, we may get to keep warriors like her around for longer in the future.

Dr. King said, “Life’s most urgent and persistent question is, What are you doing for others?” Let’s remember that care, while undervalued by capitalism, is the lifeblood of our revolutions.

Be Your Own Healer

Be Your Own Healer

As anyone with a complex, poorly understood illness can tell you, there’s a lot more to managing your health than doing what the doctor suggests. We usually find our way to complementary or alternative therapies that help us feel better and we learn, sometimes the hard way, how to eat right, manage our energy, and life-hack our way to the best reality we can create for ourselves. Living well, and healing is so much more than just taking care of the body.

You’ve probably seen the phrases “mind, body, spirit” or “mind-body connection” tossed around, but what does that really mean? It’s the ancient understanding that these three integral parts of us are intimately connected. Emotional pain can cause physical pain, physical pain can cause emotional pain, spiritual distress can cause emotional distress, etc. Every part of us is connected.

And, while our mainstream medical establishment acknowledges this connection, as evidenced by the increasing number of yoga and meditation programs in hospitals, most of the instruction we get from our doctors is strictly body-focused and often limited to medications and physical therapy.

In hanging out with so many people over the years with Lyme and other so-called “chronic” conditions, I’ve observed that the big difference between people who recover and the people who stay sick is always this mind, body, spirit link. Folks can do all the therapies and take all the medicines, but if they aren’t also nourishing their mind and spirit, they don’t fully recover. In the Lyme world, this looks like people who are sick for decades, or continue to get well but relapse over and over. It’s really important to address mind, body, and spirit with equal intention. Just as I would never suggest that someone focus only on the body, I would never suggest that someone strictly try and meditate their pain away either.

Why “so-called ‘chronic’ illness?” After supporting so many folks with health challenges, I believe strongly that many illnesses become and stay chronic precisely because people are not addressing all three parts – mind, body, spirit – with equal care and attention.

If you’re not addressing all three right now, that’s okay! It’s not like we learn how to do that in school, and so many of us grow up without spiritual nurturing, even if we grew up with a religious tradition. Also, you can start healing these other parts of your at any time. It doesn’t have to be complicated or require any money either. Simply taking more conscious deep breaths every day could change your life.

The late author and metaphysical healer Louise Hay popularized the spelling “dis-ease,” to illustrate that the cause of illness is a disruption to our natural state of ease. The Latin prefix “dis-” means “apart” or “away.” Illness happens when we get away from our body, mind, and spirit’s natural way of being, usually because of chronic stress or trauma that weakens the body’s natural healing abilities. The trauma can be emotional, physical, or psychological. And the physical cause could be something like a viral or bacterial infection.

I’ve found in my work that most people with chronic conditions have experienced multiple kinds of trauma, i.e. family abuse, multiple concussions, and grief over the loss of a loved one. On top of that, being sick for a long time is, in itself, traumatic, even if you don’t experience medical trauma.

And here’s the thing, you can’t heal trauma with a drug. You might be able to ameliorate the symptoms but the underlying trauma remains and can only be healed by nurturing the mind and spirit. This is where you have to learn to be your own healer.

I know. You just want someone else to make it all better. We all do. But that’s just not how it works, Beautiful. You may want to have teachers, healers, and mentors to support you along the way, but ultimately you are the one who knows you best.

So where to start? I’m actually writing a book about this (stay tuned!) but here are my initial recommendations:

Set the table for healing. Develop some daily practices that reduce stress and calm your nervous system. I recommend that everyone have a mindfulness practice, even if it’s 10 minutes of meditation a day, done in bed. Insight Timer is an incredible resource for starting a practice. Having a regular gratitude practice will begin to shift your mindset from scarcity towards abundance, which naturally reduces stress. Notice when you’re being hard on yourself or stuck in a worry loop. It’s super normal to be stressed and scared when you’re sick but the good news is you can shift your attention. Activist and healer Adrienne Maree Brown says, “what you pay attention to grows.” Focus your attention on the things that serve you.

Learn about spiritual practices and know that they don’t have to be religious. Spirituality, at its core, is about connection – to the divine, but also to the earth and other humans. It might be that sitting by the window and watching the birds helps you feel connected. That’s great. You might just set the intention to explore your spirituality and see what happens. Make stuff up. Create your own rituals. Try out existing spiritual practices. There’s no right way to feed your spirit.

Be curious and explore different avenues for healing support. If you’ve never seen a therapist or a counselor, that might be a great place to start, especially if your health insurance covers it. Know that not all mental health professionals are the same and it may take some time trial and error before you find someone who is a good fit for you. It’s ideal if you can find someone who is literate in your condition(s) and experience. Like, if you’re trans, definitely look for someone who isn’t going to misgender you constantly. If the idea of talking about your experience isn’t appealing, check out yoga therapy. It’s a wonderful healing modality that gets you out of your brain and into your body.

I also recommend exploring some of the often-called “woo woo” modalities to see if they speak to you. I’ve seen even super science-based folks get deep into the woo in the name of healing. You might explore reiki, energy healing, astrology, shamanic journeying, and plant-spirit medicine.

If you don’t have the budget to explore healing modalities outside of allopathic medicine right now, look for free opportunities. A lot of practitioners offer free healing sessions and workshops. They also get that being sick is expensive so ask about sliding scale pricing, or work-trade opportunities if your energy will allow for that. I also ran a video series called Healcast in which I interviewed different holistic practitioners about their work so you can learn the basics of some popular healing modalities like reiki, energy healing, acupuncture, and yoga therapy.

Play. Dance, even if it’s a finger dance. Talk to yourself. Explore and strengthen your intuition by making guesses about things that are verifiable, i.e. how many letters will be in the mailbox today? Place your hands where it hurts and imagine guiding healing energy into the space. See what happens. Be silly and look for hilarity everywhere.Laugh as much as possible. 

For support with any of the above, get in touch! Self-healing is my favorite topic!

Setting Goals You Will Score

Setting Goals You Will Score

You’ve probably heard the statistic that 80% of people who set New Year’s resolutions fail to stick to them after six weeks. Why is that?

It turns out it’s all about joy.

Most people set resolutions around things they “should” do rather than things they want to do. Recent research showed that enjoyment was the major factor in whether or not people did what they said they would do.

Let’s get rid of the “shoulds.” No one ever lived an incredible, fulfilling life by choosing again and again to do only what they “should” do. I’m not saying you can bypass everything that feels hard or unpleasant, but there might be a way to wrap it in something that brings you joy. More on that in a moment.

But what is a “resolution” anyway?

The dictionary defines it as “a firm decision to do or not to do something.” A decision, it turns out, is not an action. For many of us, simply deciding to do something doesn’t mean we will. I suggest that we get rid of New Years resolutions in favor of goals.

“Goal” is defined as “a desired result.” It’s so much more specific and actionable than a decision. Setting a goal doesn’t necessarily mean you’ll score it, but it can help you focus your energy and attention. The goal in itself defines success and gives you something to work towards.

Here is an example of the difference between a resolution and a goal.

  • Health-related resolution: I will go running three times a week in 2018.
  • Health-related goal: I complete a 10k race by April 15, 2018.

The desired result of both is to get fit and establish a running routine but isn’t the second one so much more exciting and motivating? To score that goal, you will have to run regularly. You will know you’ve been successful when you complete the race. After you complete the race, you can celebrate and set a new goal to keep yourself running.

So when you look at your 2018, instead of asking “what will I do?” you might ask, “what are the results I am willing to produce?”

To hone your goal-setting skills and get ready to produce some juicy results this year, come to my workshop on 1/17, Your Ultimate 2018.

Rest, Ritual, and Enjoying the Holidays

Rest, Ritual, and Enjoying the Holidays

If you've been feeling sick, depressed, anxious or otherwise off lately, let me tell you: you ARE NOT alone! I've had so many people reschedule this week because they are WORN OUT. Even the most intentional and focused in my circles are feeling off and I've noticed this happens every year.

The holiday frenzy means we're busier, often facing increased social and financial pressure, missing loved ones who aren't around, and on top of that, these are some of the shortest, darkest days of the year! Tomorrow, Thursday, is the winter solstice, officially the shortest day of the year.

We talked in the Spoonie Action Academy coaching group last night about what we need most right now and some great themes came up around purpose, rest, ease, and being gentle with ourselves. Inspired by that conversation, here are some of my tips for getting and staying grounded through the rest of the winter holiday season:

  • Be purposeful in your actions. If you don't have a meaningful reason to go to a holiday party and you'd rather rest, get your rest on!
  • Practice deep breathing and grounding exercises throughout the day to shift and focus your attention. Just taking three deep breaths before packing a suitcase will help you pack faster and with more ease.
  • Divide up your to-do's into small sweet steps and focus on them one at a time to prevent overwhelm. It's so simple but how often do you do it? :)
  • Take time for yourself. This is especially important for introverts and the chronic illness crowd. Socializing takes a lot of energy and it's important to recharge. This could be as simple as taking a walk alone or getting 10 mins of quiet time at the beginning of the day meditating, coloring, reading, or otherwise doing something you love.
  • Honor the sun by celebrating the solstice! You'll find that a lot of yoga studios have special restorative solstice classes designed to help you rest and celebrate the change in seasons. Not so into yoga? Here are some ideas for rituals you can do at home with friends, family, and chosen family. 

Take good care of yourself! It will support you and everyone around you to have a more joyous holiday season. 💛

I'm not sick anymore!?

I'm not sick anymore!?

Perhaps like many other American families, my family’s most steadfast Thanksgiving tradition is to go around the table before we eat and invite each person to share something they’re thankful for. My mom this year shared, with teary eyes, how thankful she was that I’m feeling better. It was a sweet moment because my mom has invested A LOT in my healing – she was the one who researched my symptoms and pushed me to get a Lyme diagnosis – and it feels like all our collective hard work is paying off. It was also sweet for me because, before my mom shared her gratitude, I wasn’t really present to just how much my energy had shifted. Healing had snuck up on me. 

I've historically found holidays difficult. The travel, socializing, and food traditions all presented their own set of challenges. I made them work, with lots of rest and support requests, but they still always felt like a big energy investment that I’d pay for afterward. Even with recent positive shifts in my healing, I was anticipating some challenges with year’s festivities, as I mention in this Huffington Post piece about how spoonies prep for the holidays,

My recent refrain has been that I’m not quite 100%, but feeling better than I have since high school. That has been true but just in the last couple weeks, I’ve been feeling so good that I’m not sure I can fairly call myself a sick person anymore.

What produced this miracle? I’ve gotten a big boost in the last six months from getting Ondamed treatments and doing a lot of intuitive work (solo and with support) but it’s the Dynamic Neural Retraining System (DNRS) that really took things to another level. I started the program on the 11th, just an hour after chatting with the writer of the Huff Post piece. This past week, starting on the 20th, I went on a serious bender. I didn’t do any drugs or alcohol but I did a BUNCH of things that would have previously landed me on my back, potentially for a couple days. I drank coffee. I stayed up ‘til midnight two days in a row. I ate everything that people brought to my partner’s birthday potluck, including a slice of cake with buttercream frosting (made with a bunch of foods that usually make me sick), I did more than half the driving on two 10 hour car rides, I went for a hike, I won a game of Scrabble, and won a game of darts. And not only did I do all those things, but I didn’t worry much about the consequences.

I have to give a little credit to the tiny amounts of caffeine I had, as well as activated charcoal capsules, which seem to keep me from having my usual reaction to gluten. But, for the most part, I credit DNRS. I have also noticed a profound change in my sound sensitivity. I was able to listen to loud music in the car yesterday and today without feeling like someone was poking sharp sticks in my ears. In fact, it felt pleasant.

If you haven’t heard of DNRS, look that sucker up. It’s a drug-free treatment program that can completely reverse symptoms of multiple chemical sensitivities (MCS), chronic pain, fibromyalgia, Lyme disease, ME/CFS, anxiety, depression, POTS, and PTSD. DNRS creator Annie Hopper suffered from severe MCS and discovered that these illnesses are a result of limbic system impairment and that, through repetitive neuroplasticity exercises, they can be healed.

As a refresher, the limbic system in the brain deals with motivation, emotions, and arousal and it includes the amygdala, which regulates our fight or flight response. It is closely integrated with the immune, endocrine, and autonomic nervous systems. A limbic system impairment, caused by trauma (chemical, emotional, physical, or otherwise), can cause our bodies to perceive threats everywhere in the form of pain, anxiety, food allergies, and more, even when we’re perfectly safe, and it can last for decades. Hopper says the impairment is simply a cross wiring in the limbic system and by practicing the DNRS exercises an hour a day for six months, you can rewire your brain and feel TOTALLY NORMAL.  

If you’ve been living with treacherous symptoms for years, or most of your life, that sounds way too good to be true.

I have a couple buddies who started the program a couple months ago and even though they were raving about the results, I was resistant, for two reasons. First, I didn’t want to add yet another thing to my long daily self-care routine. Second, I felt like I might need to feel all the feels and dig deeper into my emotional baggage to heal fully. In reference to the first worry, doing DNRS has allowed me to cut things out of my routine. I no longer feel the need to do daily coffee enemas and while I still want to meditate and do yoga every morning, I don’t feel like I have to do 40 minutes of it to have a pain-free day anymore. That’s nice because I feel freed up to do other kinds of exercise. The DNRS training rounds can be split up into two 30-minute chunks and they’re mood-boosting, so it really doesn’t feel like a chore. Regarding the emotional work, DNRS has helped me see clearly just how many negative emotions and behaviors I was still holding on to. It has been good to be aware of them and a relief to see that I can train myself out of them.  I probably could have had the same breakthrough on my own but it would have taken a lot longer for me to get there.

If you want to learn more about DNRS and hear from someone who’s a couple months into the program, I’ll be on Facebook Live this Friday at 1pm EST interviewing my buddy Eli about his experience. After just a couple months of DNRS, he went from living in a tent in his mom’s backyard because of crippling mold and chemical sensitivities to getting on a plane and enjoying a trip to New York City. You can get the link to join us and sign up to get a reminder when we go live on Facebook here.

Perpetuating the Illusion of Having Your Shit Together

Perpetuating the Illusion of Having Your Shit Together

Today you have permission to be authentic. 

Something that has come up a lot recently in my coaching sessions is the pressure to show up as "doing great" when that's far from the truth- because of relationship difficulties, challenges at work, health issues, a recent loss, or something else. One of my clients described this as pressure to stay poised even when she was feeling REALLY sick.  This isn't good for us because it doesn't allow us to feel all the feels we need to feel AND we actually expend more energy. We spend energy feeling the thing and MORE energy suppressing it/lying about how we're doing. Acting in this way also perpetuates this totally false assumption that some people somewhere always have their shit together, always feel good, and are always successfully cruising through life without the support of anyone else. 

Let's be real, no one has their shit together all the time. In fact, most people are struggling with at least one thing most of the time. 

So why do we spend so much energy trying to stay poised and uphold the illusion of being fine and having our shit together? 

We usually try to stay poised out of fear – fear that we'll push others away or fear that they won't be able to handle our truth, especially if it's something that's been true for a long time (like years of being in pain).  It's true that they might not be able to handle it, but that's not about you. They just may not have the tools to handle their own discomfort. And when you withhold what's true for you, you're actually doing a disservice to yourself and others. You're robbing yourself of the opportunity to be seen and loved fully, and you're robbing others of the opportunity to support you, love you, and be connected with you. 

That pressure we put on ourselves to show up as having it together is upholding a capitalist construct that hurts everyone. Our capitalist society thrives because of a binary that certain things are the norm, i.e. wellness, happiness, financial success, productivity, independence, and that other things are not normal, like sickness, depression, financial struggles, and needing support from others. We know in our hearts that all humans struggle with these supposedly not normal things, but we still hold ourselves up to that norm sometimes. And it that can feel reeeeeaaaaallly shittty. 

With everything that's going on in our country and the world right now, it's more important than ever for us to be connected and build connection wherever we can. We're all struggling with something, so let's be in community with that and support each other through it instead of suffering alone.  When we are real with someone, we give them the gift of being real too, and we both get the opportunity to connect. 

The holidays are approaching which can mean a lot of time with family, seeing people at holiday parties, and a lot of the "how are you?" question. I want you to invite you to seize that as an opportunity to experiment with being courageous and truthful about what's going on for you. If things are difficult at work right now, it can be as simple as saying, "you know, things are difficult at work right now." You might find that the person you're talking to says, "Yeah. Same here."  Boom! That takes way less energy than saying things are great!

Let's call bullshit on that binary and give ourselves a real shot at true connection.  

Note: I want to give a shout out to Johanna Hedva whose  essay "Sick Woman Theory" influenced this piece. 

Discovering the Value of Embodiment and Play

Discovering the Value of Embodiment and Play

This weekend I got to attend a symposium for rising practitioners organized by Mobius Executive Leadership in Newton, Mass. It was so cool just to be in a room with other young coaches for two days, and especially coaches who approach the work in pretty different ways. Everyone there was equally committed to facilitating social change, on an individual and global level, and doing it in the most playful way possible. It was a refreshing reminder that personal development doesn't have to be "work." 

I most appreciated the emphasis on physical movement and connecting from a centered place that seemed to be a guiding principle throughout the weekend. Nearly everything we did either started with a movement exercise and/or taking a moment to get grounded and turn inward. On the second day, for example, we started the day with some contact improv, which was followed by a song, meditation, and a visualization exercise. Then we had short dance parties between each afternoon session. It felt so good!

I often feel way too tied to my computer, too static, and it was such a treat to move and use my body as much, or maybe even more than, my brain. That helped me see that I want to organize my life around movement instead of the other way around. I am also going to do more in-person sessions with clients so we can walk, move, dance, etc. as it feels right. One of the symposium’s organizers, Yotam Schachter, shared with me that this embodied approach to coaching and facilitation is growing in popularity and will soon be as hip as mindfulness has been in recent years. If that’s what the future of this work looks like, full of movement, play, and centering, I’m super into it.

“Embodied coaching” is defined here as “concerned with posture, movement, breathing, intention, and awareness.” It also considers emotions to have geography in the body, which psychologists and trauma specialists have understood for a long time and which has led to the rise of somatic practices in counseling, psychology, and elsewhere, I have not seen this as much in the coaching space.

There are several embodied coaching approaches though, and I’m excited to see them used more widely, especially in corporate settings. I personally look forward to integrating somatics and ontology in a deeper way in my work. It just makes sense. In ontological coaching, we are always encouraging observation. That generally means observation of thoughts and the quality of your energy, but why not also foster greater body awareness at the same time? 

I had the opportunity to be on the receiving end of a very somatic experience with Ishita Sharma of Come to Center this weekend. Ishita is emphatic about not being a coach, so I won’t call it a coaching session, but the session, whatever it was, was both the most playful and profound I have experienced with any healer or coach. 

At one point I was talking about the sadness I was experiencing and Ishita encouraged me to fully experience it in my body, through all five senses. I won’t go into all the details but I ended up feeling and resolving some pretty significant physical pain, I cried, I sang, I did wheel pose, I lied on the ground in savansa, and I got a kiss on the cheek at the end, which I opted into. I also saw so clearly something that I’d been missing in my quest to really love myself, which was fully embracing my pain, physical and emotional, and expressing gratitude for it. It’s so obvious to me now that part of the reason I’ve been struggling in the last couple months is that I wasn’t embracing my wholeness. I was fighting and questioning parts of myself instead of inviting them in and loving them. We can’t compartmentalize ourselves and expect to heal. We can only heal fully and we do that by loving and fully experiencing all of ourselves – the good, the bad, and the painful. I know this, and I tell others all the time, but I haven’t been doing it for myself. And even though I've been writing and sharing gratitudes daily for a couple years, I haven't once expressed gratitude for the physical pain that's been most present and persistent. Seeing that was a huge breakthrough for me.

I’d already started playing with a more embodied approach to coaching before this weekend and now I’m super pumped to integrate what I learned and bring even more body awareness and play into my practice. If you’re interested in being my guinea pig, send me a note and we’ll set something up. :)

Unrest: A Must-See Film

Unrest: A Must-See Film

I got to see Unrest last night, the new documentary about Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) by Jennifer Brea. At the time she got sick, Brea, a journalist, was too ill to write about her experience so she began filming herself. The film is her story of trying to get medical help and learning about the illness through conversations with doctors and other longtime patients.

I was reminded while watching it on the big screen at Coolidge Corner Theatre that just being able to attend the screening was a privilege. Most of the people Brea interviews in the film haven’t been able to get up and go to a movie theatre for over a decade. They are too sick to get out of bed. One featured patient hasn’t spoken in a year.  Even folks with ME who aren’t bed-bound are much too sensitive to sound, light, and scents to be in a movie theatre. I learned about the film from a friend who is bed-bound with ME, Lyme and severe mold sensitivity. She is so sick that something like trying to go to a movie theatre could be fatal for her. Still, she’s a huge activist and ME advocate and hands down one the strongest spoonie I know. It felt important to see the film, and bring people to see it, to honor her and the hard work of so many people like her.

I also felt called to see the film because I knew it would speak to my experience, specifically the often untold but infuriating story of living with a debilitating illness that is largely ignored by the National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) and poorly understood by the medical field in general. ME is not a rare illness yet it gets a teeny tiny fraction of research funding. The same is true for Lyme. In both communities, suicide is very prevalent but because there’s so little money for research, we don’t have the data to show how widespread it really is.

Here’s what we do know about research funding:

  • Parkinson’s, which affects about one million Americans, garnered $169 million in the NIH Fiscal Year 2018 research budget.
  • HIV affects 1.1 million Americans and got an estimated $2,471 million in the same budget.
  • Lyme got $22 million. Because the NIH and CDC do not recognize chronic Lyme, we don’t know how many people are living with it. We know that somewhere between 300,000 - 500,000 people get it every year.
  • We don’t really know how many Americans are living with ME because it’s so poorly diagnosed but I’ve read numbers from 800,000 to 2.5 million. The estimated research funding for ME in FY2018 was only $6 million.

It’s important for everyone to understand just how many people are left behind by modern medicine and to know specifically which illnesses aren’t getting any attention so we can build the political will to change the status quo.

I took my partner and two friends to the screening and I’m asking all my friends and family members to see it. It’s also just an excellent film. It has 100% on Rotten Tomatoes so far so I’m not the only one who thinks so.

I often walk away from justice-oriented documentary screenings with a feeling of despair because I feel more educated about a problem that I feel mostly or totally helpless to do anything about. In stark contrast to that, I left Unrest feeling super pumped. It was so unbelievably empowering to see my struggles and the struggles of my community on the big screen. I was pleased by how Brea portrayed her difficult journey to getting a diagnosis. Just like me and so many of my friends and clients, her pleas for help with her mysterious and incredibly debilitating symptoms (i.e. not being able to walk) were initially dismissed by doctors as stress-related. She was getting her PhD at the time and her doctor explained her symptoms by saying she was probably too stressed about her exams. I was told the same thing again and again in my journey. One of my more painful memories is one of trying to explain to a rheumatologist that I couldn’t do my hair anymore because I couldn’t hold my arms up long enough to blow dry or even brush it. (This is why I have short hair today.) Her response? “Yeah. That stuff’s exhausting. I hate how much energy it takes to look nice too.” WTF LADY!?!? I’m trying to tell you I can’t hold my arms above my head. Brea shares in the film that it wasn’t until she showed one of her doctors a video of her in a moment when she was unable to move that he finally took her seriously. More doctors need to understand this aspect of the patient experience.

Unrest also shows, in a very inspiring way, just how much people with even very severe chronic illness can accomplish. Brea made the film from her bed, conducting interviews on skype with patients and doctors all over the world. The most common theme in all the reviews I’ve seen and heard about the film so far is how incredible it is that Jennifer was able to create it all while being so sick. It is incredible. And people like us do incredible things against seemingly impossible odds every day. People with chronic illness raise families, run businesses, make beautiful and poignant art, and get legislation passed. This isn’t common knowledge because for the most part these people are invisible, knocked out of society by the illness. There are also thousands of people who are able to function but because their illness is invisible, you would never know that they’re in excruciating pain every day, or pushing through severe fatigue. Part of my mission as a coach is to support more of these invisible people to be open about their experience, for the sake of their healing and as a public service, so everyone is more aware of how widespread these illnesses are.

Unrest highlights the invisibility problem and how it disproportionately affects women. It specifically calls out the long history of gender discrimination in medicine, going back as far as the Ancient Greeks, and shows so clearly how little we’ve evolved on this front. Thankfully the film is fueling a recent uptick in public discourse about gender bias in medical research and treatment. I appreciated this recent piece on the Harvard Health Blog and am eagerly awaiting Maya Dusenberry’s book Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick set to come out next Spring.

Finally, Brea gets mad points for her clear call to action after the film. Like the great organizer that she is, Jennifer joined us by Skype for a Q&A session after the screening and told people how they could plugin to help spread the message of the film. Her advocacy organization #MEAction is running a campaign to get the film shown in doctors’ offices, hospitals, medical schools, and in front of elected leaders to further educate people on ME/CFS and the broader issues in medicine that put ME/CFS patients at a particular disadvantage. A clipboard was passed around to capture the emails of interested parties. Nearly everyone in my row signed up to stay informed. Unrest is going to light a fire and I can’t wait to see where it goes.

Definitely, see the film and invite everyone you know so we can begin to turn the tide on this immense and unnecessary suffering. Click here to find a showing near you or find it on iTunes.